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  • Leah Myers, Executive Director of the FamilieSCN2A Foundation, and Jenny Burke, who sits on the
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You first met Sofia Priebe when she was just ten years old in a story raising awareness of her rare degenerative For thousands of years, humans have been deliberately altering the environment, their bodies, and the evolution of other ... A rare, progressive Policy, Access, and the Road Ahead, examines the federal landscape surrounding

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